Adjusting to a new normal….

New normal is okay. johilder.com

In a few days, my family and I will be celebrating Easter – the first holiday without my dad, who died unexpectedly at the end of December, and just two months after my cancer diagnosis.  The loss of a parent is devastating, but even more difficult when it is sudden and there is no opportunity to say goodbye.

As the holiday approaches, it made me think about our new normal.  Every day now I live in a new world…adjusting to a new normal for us. Before my diagnosis, I would have happily described myself as just a mom, a wife, a daughter. But NOW?  Now, I am cancer patient.  Now, I am a daughter without her dad.   The ways I see myself, and that others see me, have changed.  Part of that is how people LITERALLY see me.  I look different now, without my hair, and I am so conscious of that. But I am also different in so many ways that no one can see.

I now live in a world where CANCER is my constant companion.  When I’m not feeling side effects from it, I am thinking about my treatment for it or if I will ever be free of it.  I can’t walk past a mirror without being reminded that I have cancer.  I take eight different pills each morning and another six at night, an ever-present nudge that says…”hey, don’t forget you’re sick”.  And I still spend an awful lot more time in bed or on the couch than I ever did before. Given the amount of time I spend watching HGTV and the Food Channel, my house should look a lot more stylish and I should definitely be a much better cook.  I guess that is NOT part of my new normal (yet).

What is also part of our new normal is living without my dad, and my kids without their grandfather.   There will be many firsts for us….and having our first holiday without him is a tough milestone to be facing.   I am still surprised by how sucker-punched I can feel unexpectedly when I walk by a picture of my dad in our living room or when our kids ask about him.  And they talk about Pop Pop all the time, which I love. They are so young and I am so angry that they have been robbed from having more time with him.  I am grateful though that the time they had together created so many wonderful memories for them.  To my kids my dad was simply their Pop Pop….he was the type of grandparent who rolled on the floor with them, had pillow fights and built Lego sets.  He was stubborn and always wanted to do things to be with them even if was hard for him. My son started little league last year… And I can remember a day last summer when my parents were visiting and we started a baseball game in the yard. Pitch after pitch, my dad insisted on playing with us even though I knew he would probably be hurting for days after….which he was. But they loved playing with him and that was all that mattered to him.

Kids are amazing…they speak openly about someone who is no longer here, blissfully ignorant of the pain it might cause to hear their name or be reminded that they have left us too soon.  When they are hurting or missing someone, they do what comes naturally…talk about them, reminisce about them, rather than stuffing their feelings down deep because it might hurt too much to remember.

There are many parts of our new normal that are incredibly positive though.  I get to spend a ton of time with my kids. I get them off to school every day, without the usual craziness of having to get myself out the door for work as well.  I am here each afternoon when they get home from school.  I get to do homework with my son every day, color princess pictures with my youngest daughter and watch as my older daughter, in kindergarten, is now reading with ease.  This has been a gift that I would have never have had without this time home.   And I have bragged endlessly about our “village”…the amazing community of people – both in person and now virtual, thanks to this blog – who have embraced us over these past six months.   I always knew we had great friends and family but I never could have imagined the support, love and generosity that we have been lucky enough to receive.

Life for us will never be the same.  Hearing the words “you have cancer” changed our lives forever.  Hearing the news that my dad was gone changed me forever. And the fact that my husband had the unimaginable job of having to tell me both these things has changed our relationship forever.

My goal, however, is to try to have that change be more positive than negative.  Of course there are days that I am terrified about the future.  I ponder heavy issues like mortality and heaven, I lose sleep thinking about my kids and their futures, I think about feeling well now but a time when that might not be the case.  I worry about my mom and pray that she will have the courage to survive losing her husband and best friend, while having to watch her youngest child fight this battle at the same time.

However I try and have faith…faith that there are reasons those we love are taken from us sooner than we would have ever imagined, a reason that the last goodbye we said was truly the last…even though we didn’t know it. I have faith that this disease does not and will not define me but realize perhaps there is a reason that I am in this fight….that perhaps my voice and experiences can help others.  I have faith that our family – and others around us – will have an even greater appreciation for one another and the time we have together.  And faith that we each have the strength to overcome whatever burdens that life throws our way.  I don’t imagine that any of this will ever be easy, but I can only hope that it becomes easier as we adjust to our new normal.

#gameon

17 thoughts on “Adjusting to a new normal….

  1. Thanks Jen. It is always refreshing and inspiring to read your posts. xoxo

    Sincerely,
    [cid:image004.png@01D06C61.E4C46C90]

    Cynthia Wojtaszek
    Oncology Regulatory Strategy, US
    Office D2.248 / Mailstop D2.204
    Office 609-252-5662/ Fax 609-252-5286
    [cid:image003.png@01CF7416.17094620]

    Liked by 1 person

  2. I am in awe of your strength Jen. It is that strength that will get you through this battle. And your dad is with you every moment, fighting with you. I met him at the veteran’s day assembly at school…what a sweet man!!
    You keep on fighting, we’re all in your corner.
    xoxo

    Liked by 1 person

  3. Hi Jen,

    I feel your pain during this Easter season, but it will get easier. You’ll NEVER forget, but it does get easier and you’ll start to think more of the good times that you had with your dad and not the sadness of his passing. I think of the deceased members of my family with sadness at times, but talk and laugh of the good times we had together with my two remaining siblings. I’m thankful that I still have a sister and brother who share love together and try not to take for granted the time we have together. We are up there in age; my brother is 93, my sister is 82 and I just turned 77.

    Give my love to your mom, sister and of course, my love to you, Brian, Jake, Kate and Shea.

    Enjoy Easter with you family and dwell on the happy times!

    Love, Aunt Dottie

    Liked by 1 person

  4. Hey Jen. THANK YOU for continuing to keep your fans connected to you. You are simply amazing and when I read your posts, I always remember to pause, take a breath, and be thankful for all I have. Including YOU as a friend. Happy Easter!

    Liked by 1 person

  5. Pingback: What's My New Normal? Myeloma Survivor Jennifer Whalley Moog Dishes - The Myeloma Crowd

  6. Hya Jen your story is an inspiration I too have myeloma which has just progressed from asymptomatic to active myeloma. I am an active 57 yr old midwife in the uk. I have 3 children and 6 granddaughters so have much to live for. I have just started CDT on the myloma x1 trial before stem cell transplant in 6 ish mths. Here’s to long remission xx dawn

    Liked by 1 person

  7. Jen – you never cease to amaze me with these posts – thank you. Yes, my dear, cancer has changed you – you are more inspirational, insightful, loved, beautiful and wise! As if that was even possible….You are amazing and you totally rock. I’m thinking of you and pulling for you every day! xoxoxo

    Liked by 1 person

  8. Losing a parent is really something you can’t prepare yourself or anyone for. It’s a void like no other. My heart breaks for you you that you going thru a one two punch. They are truly never to old, to sick or too anything. You are simply never prepared for it because they spend your life being your rock. I can totally relate to the sucker punch moments, they still happen to me, 8 years after losing my mom, I hate to tell you, But it gets a little easier. The first year of “firsts” is truly the hardest, Eventually, maybe even now with the help of the kids, you are able to smile and laugh at how wonderful your dad was ❤ We are blessed that we had them at our Weddings, you are so very lucky he knew your kids as they knew him as well. I still get angry, too. Cry when you need to, and call if you need to talk There is no right or wrong when it comes to handling any of this. I can say this though, you are handling this better then anyone I know could ❤ I often hear people say that they wouldn't know what to do if this happened to them, but the truth is, we don't have a choice. The choice is how we live with it. Celebrate his life, and yours!! He would want that more than anything!! But is still sucks!!!!! ❤

    Liked by 1 person

  9. Jen – First, my condolences on the loss of your father. I am a multiple myeloma survivor too. My first stem cell transplant was Nov 3, 2014 and the second was Feb 23, 2015. The combination of the two so close together knocked me for a loop for a bit, physically, and I still have some challenges, but mostly right now I’m dealing with the emotional and mental issues. Yes, every day the words “cancer”, “mortality”, “chemo”, etc. breeze through my mind, no matter what. I started therapy with a social worker and I’m going to start physical therapy soon. I still don’t know what my new normal is going to look like because honestly, I want my old normal back.

    God bless you and your family. Special blessings to your husband – he sounds like a good one, like mine. Thanks for sharing your experiences. Stay healthy.

    Liked by 1 person

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